THE FRUSTRATED EPILEPTIC.
  • Blog
  • About
  • Good Reads
  • Pearls & Ferns
  • Blog
  • About
  • Good Reads
  • Pearls & Ferns

Sweet Freedom: Epilepsy Monitoring Unit, Day 3

1/21/2015

 
Picture
This morning, when the nurse came in to check my vitals (after six whole hours of sleep!), she asked me a bunch of questions to see how “with it” I was, and she asked me if I knew what day it was.

Ohhhhh, I knew. 

I knew because one year ago today, on January 21, 2014, I had a seizure while driving home from work.  That incident completely changed the trajectory of my life. 

And today, one year later, on January 21, 2015, I was told that I am being released (earlier than expected, even!) from the Epilepsy Monitoring Unit in Rochester later this afternoon. 

Funny how that came full circle, on today of all days—a good omen, I hope.   

These tests proved that I am actually epileptic.  There was a concern that I might not be—that there might be something else wrong instead, some new horror.  So that’s good.  And it also means that I don’t have to change the title of my blog.  (Whew.) 

They found that in addition to seizures, I am also having these unexplainable “spells.”  (The doctors could not describe them any better than that.  My body seems to act like it’s having a seizure, but my brain waves were not showing any seizure activity, so…?)  They want me to come back for more testing if the spells do not improve.  

Some of these “spells” happened while I was on that second medication, so I didn’t actually have any seizures while on the Vimpat like I had thought.  (Which is good news.  They prescribed a combination of Keppra and Vimpat for me to try, and hopefully, that helps.)

As for the spells, they are most likely stress-related.  (I have been a nervous wreck since I was diagnosed—I live in constant, sometimes paralyzing fear that I’m going to have a seizure, and I’m sure that has taken its toll.)  They told me that I might have to have further testing in a spells clinic, but in the meantime, they told me to try Cognitive Behavioral Therapy to try dealing with them.  They said I should try talking through my problems with someone.

Or, better still, writing about them.

Yeah.  The doctors actually told me to write.

It sometimes seems like the whole universe is telling me to just…write.

So I’m going to get back in that habit, and let writing save me, and hopefully, a year from today, I’ll have some more awesome, life-changing news to report. 

 


Comments are closed.

    Old Stuff.

    January 2023
    December 2022
    August 2022
    July 2022
    June 2022
    May 2022
    March 2022
    February 2022
    January 2022
    December 2021
    October 2021
    September 2021
    August 2021
    July 2021
    June 2021
    May 2021
    March 2021
    February 2021
    November 2020
    July 2020
    April 2020
    March 2020
    November 2019
    September 2019
    August 2019
    July 2019
    May 2019
    March 2019
    December 2018
    October 2018
    April 2018
    March 2018
    February 2018
    January 2018
    December 2017
    November 2017
    October 2017
    June 2017
    May 2017
    March 2017
    January 2017
    December 2016
    November 2016
    October 2016
    September 2016
    August 2016
    July 2016
    June 2016
    May 2016
    April 2016
    February 2016
    January 2016
    December 2015
    November 2015
    October 2015
    September 2015
    August 2015
    July 2015
    June 2015
    May 2015
    April 2015
    March 2015
    February 2015
    January 2015
    December 2014
    November 2014
    October 2014
    September 2014
    August 2014
    July 2014
    June 2014
    May 2014
    April 2014
    March 2014
    February 2014

    Categories.

    All
    Epilepsy.
    Fostermomming.
    Frustrations. Ugh.
    Heartbreak.
    Lessons.
    Love.
    Projects.
    The Beautiful Things.

    RSS Feed

    Club Mid
    Scary Mommy
Scary Mommy
Contributor
Click to set custom HTML